Is this dream over yet? I am glad we are really busy with Ashlyn's schedule and going back and forth from the hospital since it makes it easier to cope with the fact that Maddy is almost 3 weeks old, and she has been in the NICU for 16 days.
Today has been pretty much the same as yesterday as far as Madalyn's status goes. Madalyn has had pretty good blood sugar readings during the past 24 hours, with no changes being made to her treatment plan. She continues to receive high calorie formula and milk and is still required to eat 80ML's at each feeding. After breast feeding, we are still required to put an additional 30ML's into Madalyn by bottle. Trying to get her to eat 80ML's, or to take the additional 30ML's after breastfeeding proves to be very challenging at times. Madalyn has a little temper and lets us know her like and dislikes....I am not sure where she got that from.
Ashlyn is getting better each and every day, but still requires a wheel chair when we go to the hospital since walking long distances is painful and difficult. Hopefully we won't be using the wheelchair much longer since we really don't want to be going to the hospital anymore.
We talked to one of the NICU doctors today, and he said that if Maddy has 3 good days in a row (not sure which day we are on at this point), that they would probably be able to discharge her. He also said that she would probably have to stay on the high calorie fomula and hind milk when we were at home. We would be fine with that as long as she were able to be home with us, and the doctors thought that they had addressed and resolved her blood sugar issues. He also said that we would probably need to schedule an appointment with a pediatric endocronologist. That would be beneficial for our psychie, since we would like to have a reassuring second opinion.
Maddy was given a swing by one of the nurses in the NICU. It is really cute to see how content she is while swinging, and its pretty funny since her neighbor enjoys swinging as well. The nurses call her neighbor Madalyn's boyfriend, but I am having none of that!
Thanks again for all the prayers and cards. We are optomisitic that Maddy will be able to come home soon, and have seen great improvements in her blood sugar over the past couple of days. Please pray that the doctors have gotten the diagnosis correct, and that there is not a major medical condition that is causing her blood sugar issues. Also, please continue to pray for our anxiousness and that Ashlyn will be able to walk again (normally) soon. We love you all.
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